The past few weeks we have had lots of really good days and a few not so good. It really is a roller coaster of emotions. When Alex is doing well, everything in life seems so wonderful and when he is sick or hurting it feels as though everything is falling apart.
Alex has just discovered that he can order some really cool things on-line.  He ordered a plasma ball himself and enjoyed tracking the package, then of course recieving the package. He enjoyed it so much he has tried to find something little to order every day for the last few days. Here is a picture of Alex with his plasma ball, pretending to be an evil sorcerer.
The doctors have been slowly lowering the dosage of steroid and Alex is acting more like Alex again. I'm so glad, we have all really missed him.
Yesterday we had clinic and talked about some of Alex's new symptoms.  There is more paralysis on the right side of his face. When Alex smiles only the left side goes up and when he blinks his right eye is very slow to close or doesn't close at all. So this could be due to swelling because of the steroid being lowered or the tumor could be branching out and growing. They could do an MRI to see but unfortunately there wouldn't be any different they could do. We were reminded that all of this is to extend the quality of his life since there is no cure for this type of cancer. I can't tell you how that feels to hear.  My heart breaks everytime we are faced with the reality of this disease. I love all my children so much and the thought of Alex having to do this takes me to the absolute brink.
We are still praying for a miracle for Alex because that's what it will take to save his life. The doctors can't, so we are leaving it up to our Heavenly Father. Please continue to pray for him.