We just found out that we are further along with the treatments than we thought.  There are 6 more treatments left! We are pretty excited about that. A couple weeks after the treatments end they will do scans to see where we are at.  I guess the radiation continues to work for a couple of weeks after going, hopefully there will be nothing there to see!
We have started seeing signs of the radiation.  The most obvious is the loss of his hair.  He also has some burns from the radiation.  It started off looking kind of tan, then sunburn.  Now it is itchy and peeling.  Alex started getting headaches when he went off the steroids so they have put him back on those and it has helped.  He has a hard time eating as well.  It is a combination of things making it hard for him.  The radiation, chemo as well as the paralysis of his throat have made it difficult for him. The lack of food has left him very weak and has a hard time walking. We have to see how he does this weekend and then decide on whether he should have a feeding tube.
In a few weeks there will be a fundraising event in Bountiful, UT that Jake Kobielusz and his friends at DFS are doing a Crossfit workout in honor of Alex.  It sounds like one incredibly, tough workout!  A HUGE thank you to all who have put in their work and time into it and friends who are also going.  They also created a really cool shirt.  Alex is really excited about it and we are all planning on being there on February 2nd!