Saturday, December 29, 2012

12/29/12 update

Sorry for the lack of updates. We have been a bit tied up over the last ten days with Christmas and having babies and such. Alex's treatments have been going well. He has been getting the maximum "safe" dosage of radiation. He has lost all of his hair but has accepted it. He doesn't seem to mind taking his hat off in front of people. The treatments do take a toll on him physically as he gets quite tired. They have taken him completely off the steroid so his appetite and cravings have gone away. He gets hungry but never knows what he feels like eating.  His sleeping at night has gotten better since coming off the steroid. At his last clinic visit his blood cell counts were quite low which puts him at risk for getting infections. He has to wear a mask when we go out which he does not like.
On the 19th, Alex's little sister Olivia was born. The delivery was absolutely flawless. Kathy did an amazing job! Olivia is absolutely angelic, which is exactly what we need right now. Alex loves her and she loves Alex.  Kathy missed a few days of radiation following the birth. Alex got a chance to show his Nanny and Grandpa what he does every day. He liked having them there.
A couple days before Christmas Alex and his siblings got a suprise visit from Santa, arranged by some good friends. Despite his hesitation Alex did actually sit on Santa's lap. It was a lot of fun. Christmas was a great day for all the kids. We are so grateful for all the friends and family that helped with shopping and donations. It certainly took some stress off of us. Alex said it was the "best Christmas ever!" He even got a day off from radiation.
So we are not quite half way done with the treatments. It has been okay so far but we know there could be rough waters ahead. We hope and pray Alex can stay free of germs and sickness. It can be difficult to avoid with a house full of kids. But we do respectfully ask any potential visitors to our home to please postpone your visit if you or anyone you've been around has been sick.  In the meantime we will try to keep the blog and Angels for Alex Facebook page up to date as best we can. Thanks again for your prayers and support. May you all have a happy new year!

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