Thursday, December 6, 2012

Almost done with week 1

After a rough first day of treatment, Wednesday was much better and Thursday has been the best day so far.  The doctors, nurses and anesthesiologists have been working hard to figure out ways to help Alex so he doesn't have breathing issues during sedation for his radiation treatments.  He is slowly warming up to the Radiation Therapy staff there at LDS hospital.  They are very good at what they do and are genuinely concerned for his well being.  Let's hope it continues to get easier.  One more treatment Friday and then we're off for the weekend.
Alex has also been doing well taking his Temodar (an oral chemo).  I have to get dressed up in hazard gear to mix it with apple juice since he can't swallow such a big pill.  But he takes it down like a champ.  It hasn't upset his stomach yet and we hope it doesn't.  The doctors are starting to lower the dosage of steroids so his  massive appetite and strange cravings and mood swings (hopefully) will start to go away.  His puffy cheeks should go back to normal also.  He has gained 8 pounds in the last couple weeks.  Today he had 3 small bags of Doritos while at the hospital and some boiled eggs from the cafeteria.  
After radiation at LDS today we headed over to Primary Children's for his clinic visit.  They were handing out Christmas stockings full of goodies today so he scored big there.  His blood work looks good as of today.  That may change as he continues his treatment.  He will be more susceptible to infections so we are practicing washing our hands a lot.  Charlie, Alex's little brother turned 2 years old today.  Alex got to go with Kathy and I to pick out presents for Charlie.  We'll celebrate tonight and look forward to a weekend free of hospitals after tomorrow.  

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